Tourette Syndrome Resources

Thursday, August 28, 2008

Tourette Syndrome Resources in Maine and New Hampshire

Families dealing with TS may benefit from the services offered by the following organizations.

Note that with the exception of the National Tourette Syndrome Association, we are not affiliated with any of these organizations, and the inclusion of an organization in this list should not be construed as an endorsement of their services.

Organization	Services Offered
National Tourette Syndrome Association 42-40 Bell Boulevard Bayside, NY 11361-2820 718-224-2999 ts@tsa-usa.org http://www.tsa-usa.org	Information about TS Membership in TSA A wealth of books, pamphlets and videos about all aspects of living with TS
Maine Parent Federation PO Box 2067 Augusta, ME 04338 207-623-2144 or 800-870-7746 parentconnect@mpf.org http://www.mpf.org	An extensive lending library that includes many TS-related books and videos Educational advocacy services and information, including IEP, PET, 504/IDEA information Parent workshops on numerous topics, many relevant to parents of children with TS Membership and quarterly newsletter
The Family Resource Connection of the NH State Library 20 Park Street Concord, NH 03301 603-271-7931 or 800-298-4321 http://www.state.nh.us/nhsl/frc/	An extensive lending library that includes many TS-related books and videos
Learning Disabilities Association of Maine 97 Rocky Shore Lane PO Box 67 Oakland, ME 04963 207-465-7700 or 877-208-4029 info@ldame.org http://www.ldame.org	Awareness, advocacy and support for individuals and families with learning disabilities and ADHD
KIDS LEGAL 88 Federal Street PO Box 547 Portland, ME 04112 207-774-8246 or 866-624-7787 kla@ptla.org http://www.kidslegal.org/	Free legal services to low income children and families in education, housing, public benefits, MaineCare, and some family matters Trainings and consultations to providers serving low-income youth
Disabilities Rights Center 24 Stone Street PO Box 2007 Augusta, Maine 04338-2007 800-452-1948 advocate@drcme.org http://www.drcme.org	Advance and enforce rights of individuals with disabilities Information, referrals, representation at meetings and hearings Legal representation Training on rights and advocacy skills
NeuroRehabilitation Services at Goodwill 26 Portland Street Portland, Maine 04101 207-761-8402 or 800-341-4516 neuro@ginne.org http://www.ginne.org	Evaluation and treatment of individuals who have a neurological impairment
Catholic Charities Maine PO Box 10660 Portland, ME 04104 800-781-8550 info@ccmaine.org http://www.ccmaine.org	Children's case management and many other services
Speaking Up For US of Maine 24 Stone Street PO Box 2007 Augusta, Maine 04338-2007 877-207-4077 sufucentral@sufumaine.org http://www.sufumaine.org	Statewide coalition of individuals who work to support local and statewide self-advocacy organizations in networking with one another and with national organizations
THRIVE 124 Canal Street Lewiston, Maine 04240 207-782-5783 info@thriveinitiative.org http://thriveinitiative.org	Trauma-informed system of care for children and youth with serious mental health needs and their families Newletter
Providence Service Corporation of Maine 14 Maine Street, Suite 202 Box 50 Brunswick, ME 04011 207-373-0620 or 888-480-9550 contact_me@provcorp.com http://www.provcorp.com	Home-based behavioral health treatment services for children and families About 17 regional offices throughout Maine
National Alliance on Mental Illness, Maine 1 Bangor Street Augusta, ME 04330 207-622-5767 or 1-800-464-5767 info@namimaine.org http://www.namimaine.org	Support for people with mental health or co-occurring substance use conditions NAMI Membership Information and referral Education and training Advocacy About 10 regional affiliates throughout Maine
National Alliance on Mental Illness, New Hampshire 15 Green St Concord, NH 03301-4020 603-225-5359 or 800-242-6264 info@naminh.org http://www.naminh.org	Support for people with mental health or co-occurring substance use conditions NAMI Membership Information and referral Education and training Advocacy About 12 regional affiliates throughout New Hampshire
Consumers for Affordable Health Care PO Box 2490 Augusta, ME 04338-2490 207-622-7045 or 800-838-0388 consumerhealth@mainecahc.org http://www.mainecahc.org	Advocating the right to quality, affordable health care for everyone CAHC Membership Information on affordable health care coverage in Maine Various publications explaining current healthcare issues and offerings
Technical Exploration Center 34 Summer St, Suite 2A Bangor, ME 04401 207-992-9270 or 866-274-0029 info@tecmaine.org http://www.tecmaine.org	Assistive technology program TEC Membership Evaluations to suggest appropriate equipment, tools and devices Equipment loans Technical assistance AT-related trainings
Maine Support Network Maine Support Network 8 Church Road PO Box 390 Readfield, ME 04355 207-685-3171 or 866-291-0004 http://www.mainesupportnetwork.org	Technical assistance, support and professional development focused on improving educational outcomes for Maine's students including those with disabilities
Eastern Alliance in Science, Technology, Engineering and Mathematics Lynn Lovewell: Director and Project Manager, EAST University of Southern Maine 37 College Avenue Gorham, ME 04038 207-780-5449 or 800-800-4876 llovewell@usm.maine.edu http://research.usm.maine.edu/east/	Promotes the participation of individuals with disabilities in science, technology, engineering, and mathematics academic programs and careers Peer tutoring program for middle and high school students Professional mentoring program for graduate, undergraduate and high school students Seed grants for higher education institutions Undergraduate research fellowships Internships Professional development workshops on a range of topics for high school educators Covers Maine, New Hampshire, Vermont, Massachusetts and Rhode Island
Woodfords Family Services 1037 Forest Ave. Rear PO Box 1768 Portland, ME 04103 207-878-9663 or 800-438-0314 http://www.woodfords.org	Early childhood education programs Therapeutic foster care Community case management Family support services Early intervention services Individualized living options Behavioral consultations Training programs Four local offices throughout Maine
G.E.A.R Parent Network 800-264-9224 http://www.gearparentnetwork.com	Support, advocacy, education and meaningful participation in services for families of children with behavioral and emotional disabilities Several regional support coordinators throughout Maine
Integrated Community Systems 207-287-5350 http://www.servicesforme.org	Working toward achievement of an integrated system of services for children and youth with special health care needs Several regional offices throughout Maine
Autism Society of Maine 72B Main Street Winthrop, ME 04364 800-273-5200 info@asmonline.org http://www.asmonline.org	Education, advocacy, referrals and resource development for individuals with autism spectrum disorders and their families, professionals and communities Lending library containing books, resource materials, video tapes and audio tapes ASM Membership Several support groups throughout Maine